A rough day. We had the first check-up back at Santa Monica UCLA for the trial. Getting up wasn’t so bad, and the traffic, while terrible, wasn’t as bad as when you leave an hour later. Our appt was at 9, while last week we drove to get there at 10. The 405 sucks. We got there and checked in, and had some really good talks with the nurse (Lauren) who took care of him to get the blood from his port, as she talked about some nutrition approaches (6 meals a day, 1200 calories at a minimum) as well as some thoughts on going to the bathroom. She was just wonderful. Then we moved into an exam room to talk with a doctor associated with Dr Goldman, and she was wonderful too. With Dr Goldman, we did talk about potentially using CBD/THC to help with sleeping and appetite. Afterwards, he spoke with Felicia the social worker – that was for an hour, and afterward, he was definitely emotionally exhausted and a bit more sad and upset. When we got home, he was very tired. He cried. We did what we could to help him get calm. He’s obviously feeling defeated. We have to persist in making him work towards wellness. There’s always a chance this will work – and the fact that his vitals weren’t any worse is good – although apparently sodium is low. He slept the afternoon and that did seem to help, and he managed to eat some of the filet mignon we grilled. This time we left the filet mignon at the 1.5 inch thickness and my goodness it was good. He then also had a lot of gagging in the evening, while also concerns about going to the bathroom.
